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PDSA OBSERVES WORLD DOWN SYNDROME DAY IN KARACHI

Down Syndrome children must be recognized at all levels with equality: Law Secretary Shariq Ahmed

Down Syndrome must be given opportunities to thrive in normal setting: Abid Lashari

Society must welcome extra chromosome functionality: Anwar Ali Siyal

KARACHI: Pakistan Down Syndrome Association (PDSA) Karachi conducted awareness seminar on eve of World Down Syndrome Day 2018 in Akhtar Colony Karachi. Secretary Law Department & BBSYDP Mr. Shariq Ahmed participated as chief guest. He said that disability is not issue but our environment is big hurdle to accept disability. Down Syndrome adult & children have proved themselves in different fields with slow speed because of slow learning process of Down Syndrome. As it is known that slow & steady wins the race, these children committed with their passion & learning, their work is very nice & perfect, if engaged with proper training in the society. Down Syndrome Children must be acknowledged at all levels with equality. Earlier Mr. Abid Lashari CEO PDSA briefed about importance of the day & PDSA progress regarding Down Syndrome. The World Down Syndrome Day 2018 is observed under theme a�?WHAT I BRING TO MY COMMUNITYa�?. The day is marked to spread awareness about what actually Down Syndrome is & how these people play an important role in our Society. Mr. Lashari further told that Down syndrome is a chromosomal disorder caused by an error in cell division that results in an extra 21st chromosome. The condition leads to impairments in both cognitive ability and physical growth that range from mild to moderate developmental disabilities. It is named after John Langdon Down, the British physician who described the syndrome in 1866 who first described the syndrome as disorder. Down syndrome occurs because of an abnormality characterized by an extra copy of genetic material on all or part of the 21st chromosome. Same features, some of the more common features are in children with Down Syndrome including, Flattened face, Small head, Short neck, Protruding tongue, Short height. Infants with Down syndrome may be average size, but typically they grow slowly and remain shorter than other children the same age. PDSA Karachi is only Disabled People Organization (DPO) which is engaged locally to internationally to address issues concerned to persons with Down Syndrome in Pakistan.A�Pakistan Down Syndrome Association (PDSA) is based in Akhtar Colony, Karachi. PDSA & NDF have established a�?NDF REHAB CENTER, SHAHEED BENAZIR ABADa�? under support of Community Development Programme (CDP) P&D Department Government of Sindh. The center is catering needs of 100 children with intellectual disabilities (Aged 04-17 yrs) with engaging in services of life therapies i.e Physiotherapy, Speech Therapy, Psychotherapy, Occupational Therapy & independent living. The children are being provided boarding & Day Care facility at the center. The center engages in indoor games & fun activities. It was urged to community to join hands to sustain services of the center, it was urged to understand Down Syndrome first to respond. Mr. Anawar Ali Siyal President Pakistan US Alumni Network (PUAN) said that the extra copy of chromosome is also one of credibility of some, we must understand importance of extra copy of chromosomes. The purpose of formation of PDSA was to award separate identity representation of people with Down Syndrome in Pakistan.A� In Pakistan there is wide gap exists to understand Down Syndrome, even Government of Pakistan still not recognized Down Syndrome as separate form of disability. Pakistan has no specific facilities in health & education sectors to deal children with Down Syndrome. Even Doctors have limited knowledge at rural areas to diagnose Down Syndrome. It was urged that Persons with Down syndrome can easily mainstreamed, if properly trained. The Down Syndrome is more responsive than mentally retardation. Pakistan Government, Sindh Government should recognize Down Syndrome as separate form of Disability as four categories Physical Disability, Hearing Impairment, Visual Impairment & Intellectual Disability are already declared. Down Syndrome is unseen in Pakistan. There is no proper data on Down Syndrome, meanwhile International Agencies claim that more than 200,000 children with Down Syndrome live in the country. It was urged to collect data on all disabilities especially on Down Syndrome disability, to be counted as citizens of Pakistan to enjoy equal rights. The Secretary law & BBSYDP Mr. Sharique Ahmed awarded certificates to the 30 graduated beautician trained through BBSYDP Training Phae-X-I.

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